The foundation was created by Stephen and Kimberly Niggeman (parents of a daughter with Turner Syndrome) to support nonprofit medical research and charitable activities dealing with Turner Syndrome and related medical disorders. 

Since their daughter was first diagnosed, the Niggemans have worked to increase awareness of Turner Syndrome and to create a network of families and patients impacted by this medical condition.  Kim voices her determination to advocate on behalf of those affected by this disorder and Steve concurs.  “It is a logical next step for us to establish the Turner Syndrome Foundation with the hopes of finding the medical means to mitigate the impact of this tragic disease.”

The Foundation funds: 1) research on the causes and impact of Turner Syndrome, 2) education programs, and 3) enrichment programs for children and families impacted by Turner Syndrome.

Contributions are gratefully accepted, and a Fall 2007 Golf Tournament is currently in the planning stages to raise funds.  For more information, contact the Community Foundation at (610) 696-4383. 

The Chain of Love Foundation for Turner Syndrome is a fund of the Chester County Community Foundation. A copy of the official registration and financial information for the Chester County Community Foundation may be obtained by calling the PA Department of State at 1-800-732-0999. Registration does not imply endorsement